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T h e P o r t a l s o f E P A C H A F o u n d a t i o n – P h a s e I I a r e O p e n :
International Albinism
Awareness Day
June 13, 2025
Courtesy, United Nations
What is Albinism???
Albinism is a "genetic condition" which can be inherited from both parents. Albinism
occurs worldwide, regardless
of ethnicity or gender.
Courtesy,
Learn more on the following web page:
2025 Theme:
"Demanding our rights: Protect our skin, Preserve our lives"
PHOTO COURTESY: ©OHCHR and ©UNICEF - United Nations Human Rights Office of the High Commissioner (OHCHR) website https://www.ohchr.org/en/stories
The 2025 theme highlights the urgent need to prevent skin cancer in persons with albinism through awareness, screenings, and sunscreen access.
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The risk of skin cancer is extremely high for persons with albinism, and the lack of access to sunscreen, protective gear, as well as skin cancer screening and treatment can lead to foreseeable, yet preventable deaths. Skin cancer is the primary cause of death for persons with albinism in the Southern African region, rendering sunscreen an essential medicine, not a cosmetic product.
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The majority of national action plans on albinism adopted by governments include measures to ensure access to sunscreen, protective clothing and regular dermatological check-ups and skin cancer treatments.
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Several countries have initiatives providing free or subsidized sunscreen and sun protective clothing, access to dermatological services and skin cancer screening, detection and treatment and awareness campaigns to educate persons with albinism and their families about the importance of sun protection. Studies published on the impact of such interventions have shown that these interventions, where implemented, have significantly improved the health outcomes of persons with albinism.
Text Courtesy, International Albinism Awareness Day | United Nations
Must See Video
Video Courtesy, UN Human Rights
Did you know?
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Albinism is a genetic condition inherited from both parents that occurs worldwide, regardless of ethnicity or gender.
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The common lack of melanin pigment in the hair, skin and eyes of people with albinism causes vulnerability to sun exposure, which can lead to skin cancer and severe visual impairment.
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As many as 1 in 5,000 people in Sub-Saharan Africa and 1 in 20,000 people in Europe and North America have albinism.
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In some countries people with albinism suffer discrimination, poverty, stigma, violence and even killings.
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In some countries, women who give birth to children with albinism are repudiated by their husbands, and their children abandoned or the victims of infanticide.
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The movie industry has seldom portrayed people with albinism accurately, preferring to depict them as villains, demons or freaks of nature.
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Violence against people with albinism is largely met by social silence and indifference, and is seldom followed by investigations or the prosecution of perpetrators.
Text Courtesy, United Nations
Learn more International Albinism Awareness Day at:
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A True Champion:
Ikponwosa Ero, United Nations
Independent Expert on
"Albinism"
Must See Video!
Video Courtesy, UN Human Rights
Always Remember that . . .
People with albinism are NOT
ghosts or magical beings! People with
albinism are the inner and outward
beauty of "Human Beings" with
inextricable, inalienable
"Human Rights" in
every place around the world!
Global Message to All!
We who have Albinism are . . .
NOT ashamed or afraid . . .
Courtesy, https://www.un.org/africarenewal/news/coronavirus/making-education-safe-children-albinism-malawi
To PROUDLY be who we are!
We are also of “Humanity’s Family!”
Yes! We are Champions . . .
Robdarius Brown, also now as Roben X, takes a question from a
student at an Elementary School . . . . Brown is a rap
artist who was bullied in schools because he was
born with albinism.
He spoke with students about bullying.
. . . who stand up for our
“Human Rights”
as we show forth our
“Humanity!”
Video Courtesy, UN Human Rights
Around the World We are . . .
Albinism Awareness Campaign - Connie Chiu
Video Courtesy, UN Human Rights
“Humanity’s Bright & Shining Stars!”
Click Below and Learn more . . .
International Albinism Awareness Day
Learn more on the following web page:
See Also:
If you’ve missed the work of EPACHA in its Phase I duration, please be encouraged to click on the below web links.
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Sincerest Thanks are Extended to http://archive.org/web/ for having made possible an archived viewing of
EPACHA Foundation’s entire volume of its Phase I web pages:
https://web.archive.org/web/20180321225044/http://www.epacha.org/Pages/Home_Page_BkUp3.aspx
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Complete List of EPACHA - Phase I web pages:
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A P R I L 2 0 2 2 - U P D A T E D - J U N E 2 0 2 5
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